RODS (Racing for Orphans with Down Syndrome) as a non-profit is committed to maintaining each member’s confidence and trust as it relates to the privacy of individual information.

Below highlights how the non-profit shares and uses member/donor/athlete information, including, but not limited to, the RODS website, social media forums (i.e. Facebook), the RODS newsletter (i.e. Constant Contact), as well as specific donor information.


Information provided to RODS

RODS may collect personal information (information that can be used to identify an individual) such as the name, email, telephone number, home address, and payment information (such as account or credit card number – donor information), depending on the specific platform.  The types of personal information may vary (i.e. donations, log in information) and is stored within secure tools (i.e. Constant Contact) or via secure internal RODS record files).

Information Collected Automatically

Usage information. Whenever a person visits or interacts with the RODS site, as well as any third-party service providers (i.e. Constant Contact/DonorSnap), a variety of technologies may automatically or passively collect information about how the Platforms are accessed and used (i.e. usage information). Usage information may include browser type, device type, operating system, application version, the page served, the time, the preceding page views, and the use of features on the Platforms.

Programs used via the RODS site may access users’ IP address or other information about devices (i.e. computer, mobile phone, tablet or other device) used to access the Platforms. A device identifier is a number that is assigned to each device when a user accesses a website or its servers.  A device identifier may be used, among other things, to help diagnose problems with servers, analyze trends (i.e. using Google Analytics), track users’ web page movements, help identify interests, and gather broad demographic information for aggregate use.

Cookies; Pixel Tags. The technologies used on the platforms to collect usage information, including device identifiers, include but are not limited to: cookies (data files placed on a device when it is used to visit the RODS platforms), mobile analytics software and pixel tags (transparent graphic image, sometimes called a web beacon or tracking beacon, placed on a web page or in an email, which indicates that a page or email has been viewed). Cookies may also be used to associate with social networking sites like Facebook and Twitter and if the user enable interaction between activities on such as social networking sites.  Users may reduce the number of cookies, or delete cookies that have already been installed in a person’s browser’s cookie folder, or prevent tracking activities, which can be done by referring to browser’s tools menu folder.  Users may refuse to accept cookies in order to prevent tracking activities.  However, if one disables or opt out of receiving cookies, be aware that some features and services on the RODS Platforms may not work properly.


RODS uses the information collected about and from users for a variety of business purposes such as to respond to questions and requests for services; provide access to certain features (i.e. an athlete page), communicate about upcoming charity initiatives, improve the platforms; comply with license obligations; and for purposes disclosed at the time provided with personal information or otherwise with user’s consent (i.e. donor information).   Collection of a person’s location is only used for the purpose of providing with certain services (i.e. mailing gear, etc.).


No personal information is shared or sold to any third parties without specific consent.  Personal information from RODS staff is used for charity related purposes only (i.e. send a thank you email/newsletter, charity updates).   Furthermore, individuals may have the opportunity to opt-in to receive information and/or marketing offers from someone else or to otherwise consent to the sharing of information with a third party, including social networking sites such as Facebook or Twitter. If a user agrees to have personal information shared to a third party, it will be disclosed to the third party and that information disclosed will be subject to the privacy policy and business practices of that third party (i.e. Constant Contact).



RODS may receive information about individuals from third parties.  For instance, if a user is on another website and opts-in to receive information from RODS, that website will submit the user’s email address and other information so that RODS may contact the user, as requested.  That person may choose to participate in a third party application or feature (such as Facebook or Twitter applications or a similar application or feature on a third party website) through which the user allows RODS to collect (or the third party to share) information.  RODS may supplement the information from third parties in order to enhance RODS ability to serve its members (i.e. share upcoming charity events in various regions).



Each individual controls the personal information that is provide to RODS on its platforms, but some personal information is required in order to use the platforms (i.e. make a donation). If one chooses not to provide RODS with their personal information on the platforms, one may not be able to take advantage of some of those services or use some functionality on the Platforms (i.e. make a donation or have a personal athlete page). RODS will not share personal information collected on the platforms with third parties without consent. Each person may opt out on RODS emails/newsletters, stop send emails through an opt-out request which can be sent to

If a person wish’s to modify, verify, correct, or delete any of personal information collected, once can contact, or it can be updated in one’s athlete page profile as well.  In accordance with routine record keeping, RODS may delete certain records that contain personal information submitted through the platforms. RODS is not under any obligation to store such information indefinitely and disclaim any liability arising out of, or related to, the destruction of such information. It may not always possible to completely remove or delete all the information from databases without some residual data because of backups and other reasons. RODS will retain personal information, for as long as an athlete or donor is active.  RODS does not control certain privacy settings and preferences maintained by social media partners like Facebook and Twitter.  Each individual may wish to make changes to those settings and preferences and can be done so by visiting the settings page of the appropriate social media site.



RODS is dedicated to advocating for orphans with Down syndrome.  RODS works in partnership with the charity- Reec’es Rainbow Grant Adoption Foundation (, which provides RODS with the photographs and general information about the orphans.   Photographs are provided to RODS from Reece’s Rainbow with their permission, however, the true identity (i.e. birth name) and location of these children (birth country), are not provided to RODS.  Permission to feature these children has been granted by Reece’s Rainbow and their third party agreements (i.e. with adoption agencies).

RODS does not actively collect any user information from children under the age of 13. If RODS determines upon collection that a user is under this age, ROD will not use or maintain his/her personal information.  In some cases, children become advocates for RODS in partnership with their family and their parents.  In those cases, only with the parents’ consent, may photos of the children with their family may be used on the RODS platforms or via third parties (i.e. Facebook). If RODS becomes aware that information was unknowingly collected personally identifiable information from a child under the age of 13, we will make reasonable efforts to delete such information from our records.


RODS takes information security seriously and use certain reasonable security measures to help protect personal information. However, no electronic data transmission or storage of information can be guaranteed to be 100% secure. RODS cannot warrant the security of any information transmitted, and each user uses the RODS platforms at their own risk.


The platforms may contain links to other sites that RODS does not own or operate (i.e. sponsorship products such as Rudy Project). This includes links from RODS sponsors  that may use RODS logo(s) as part of a co-branding or co-marketing agreement. RODS does not control, recommend or endorse and are not responsible for these sites or their content, products, services or privacy policies or practices. These other sites may send their own cookies and may independently collect data or solicit personal information and may or may not have their own published privacy policies. Each user should also independently assess the authenticity of any site which appears or claims that it is one of RODS platforms (including those linked to through an email or social networking page).

The platforms may make available chat rooms, forums, message boards, and news groups. Remember that any information that discloses in these areas becomes public information and is not subject to the provisions of this Privacy Notice.


RODS may update this Privacy Notice to reflect changes to information practices. If RODS make any material changes, each RODS member/donor/athlete will be notified by email or by means of a notice on one of RODS platforms prior to the change becoming effective.



If there are any questions or concerns about this Privacy Notice, please contact RODS at